Emily Rapp is also the author of Poster Child, about a congenital birth defect that led to the amputation of her leg when she was a child, and about how she subsequently became a poster child for the March of Dimes.
In January 2011, writer Emily Rapp was a happy new mother when she and her husband found themselves in a pediatric ophthalmologist's office with their 9-month-old son, Ronan. They were worried about Ronan's development and had gone to the eye doctor to rule out vision problems as the culprit. Checking Ronan's retinas, the doctor saw "cherry-red spots on the backs of his retinas," Rapp writes in her new memoir, The Still Point of the Turning World. Ronan's diagnosis that day was Tay-Sachs disease, a genetic and degenerative condition that is always fatal. There is no cure.
NPR's business news starts with a new labor secretary.
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MONTAGNE: President Obama has chosen justice department lawyer Thomas Perez for the post. Perez is the son of immigrants from the Dominican Republic. He ran the labor department in his home state of Maryland and he will add a high profile Latino voice to the cabinet. But, NPR's Carrie Johnson reports, his nomination is not without controversy.
Sonic Trace is a multimedia project that follows Latinos living in Los Angeles travelling back to their families' native lands. Led by radio producer Anyansi Diaz-Cortes, it examines the link between what some Latinos consider home – before and after they or their families came to the U.S.
I'm Michel Martin and this is TELL ME MORE from NPR News. Coming up, R&B heavyweight Brian McKnight has sold more than 20 million albums over the course of his 20 year career. He'll tell us about his latest and he pushes back against some critics and the fans who think he may have gotten just a little too grown for their taste. We'll tell you what we mean in just a few minutes.
The fatal police shooting of teenager Kimani Gray in East Flatbush, Brooklyn led to days of protests and some violence; it also heightened tensions in a community already distrustful of the police. Host Michel Martin discusses the shooting, and its aftermath, with WNYC talk show host Brian Lehrer and community activist Shanduke McPhatter.