Human Testing
4:30 am
Fri March 8, 2013

Would You Want An Award With A Tainted Name?

Leonardo da Vinci's "Vitruvian Man."
Credit Commons/Leonardo da Vinci, Galleria dell' Accademia, Venice (1485-90)

Last summer, St. Louis Public Radio’s Véronique LaCapra began a conversation about some of the ethical issues involved when people are used as the subjects of scientific research.

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Human Genome - Privacy
5:50 pm
Thu October 11, 2012

Federal Commission Calls For Stronger Protections For Human Genome Data

Adenine, thymine, cytosine and guanine (abbreviated ATCG) are the four nucleotide bases that make up DNA. The sequence of each person’s genetic code is unique.
Jane Ades, NHGRI

A federal panel is calling for stronger privacy protections for human genetic data.

In a report out today, the Presidential Commission for the Study of Bioethical Issues said “whole genome sequencing” — which provides a unique blueprint of each person’s DNA —  holds great promise for advancing medical research and clinical care.

But the Commission said genetic data can also be misused and need to be adequately protected.

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